I've always valued my doctor/patient relationships, but never more so than when I was faced with what I learned was a rare disease. The distractions of the healthcare delivery system may have contributed to my 7 1/2 month delayed diagnosis... Read more →
Artificial Intelligence has begun its disruption of healthcare, but what exactly can it do to improve patient care and the system of health service delivery? This guest blog post presents an overview of the role of AI in healthcare and... Read more →
I'm sharing a full press release because it is important and because I want my peers with rare diseases to get the medications they need. Those with Rare face a multitude of challenges, but hopefully we will begin to start... Read more →
Yesterday, I received a press release that caught my attention in a significant way. It is primarily due to the fact that I'm a recipient of the generosity of blood and plasma donors. In addition, along my journey and participation... Read more →
When I decided to become a hospital administrator at 17 (who does that?) I wanted to eliminate barriers and overcome challenges so that nurses and doctors could provide better care. I guess I was advocating for patients my entire career,... Read more →
Years ago as a blogger, physicians and a few other clinicians found me and shared their books. Today, patients and their caregivers find me. Not in Vain is a daughter's advocacy in honor of her mother and her experience with... Read more →
Rare conditions, syndromes and diseases can include a really long and winding road; especially during the diagnosis period. Rare doesn't mean there isn't a diagnosis, it just means more thought and referrals for second opinions or referrals to specialists are... Read more →
Effective hospital risk managers and executives, learn the importance of communication when it comes to preventing most lawsuits. Clear communications that can be acted upon make for more efficient and effective workplaces, but also better quality and safer care. But,... Read more →
A few years ago, I read about the life and work of Hildegard von Bingen (c. 1098 - 1179), a German nun and scientific/medical writer. She began using the herbs grown in her monastery garden to aid those she cared... Read more →
This guest post from Nightfall (a cloud-native data loss prevention solution) is written for organizations that partner with those in the healthcare industry, but I share this post to help educate consumers. One reason is I often hear "you can... Read more →
Too many consumers of health care services feel stuck. They know something is wrong, but their physician (or another clinician) doesn't find anything or suggests a diagnosis or treatment that just doesn't seem to fit. While we don't want to... Read more →
I'm teaching this week - health informatics to nurses, public health and health administration students. Last week we discussed standards and interoperability; and it reminded me of a story. The memory was triggered by student discussions. One said it must... Read more →
Change is good
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